The Science of Patient Engagement and Community Linkages (Concurrent Session)-The Science of Patient Engagement and Community Linkages

Video Transcription

Video Summary

The session focused on the science and practice of meaningful patient engagement in healthcare, especially through the work of the National Health Council (NHC) and the American Psychiatric Association (APA). Suzanne Pope opened by stressing that patients must remain at the center of specialty society work, including guidelines, measures, and research.<br /><br />Omar Contreras-Escontrillas described how the NHC defines patient centricity and patient engagement as true partnership: bi-directional, reciprocal, continuous, and inclusive from the start of projects. He outlined NHC tools such as the rubric for patient-centeredness, patient experience mapping toolbox, patient-centered core impact sets, and a fair market value calculator for compensating patients for their expertise. He also highlighted mental health as a major public concern and emphasized the need for diverse, culturally adapted engagement.<br /><br />Marquita Wills then explained how the APA engages patients through telepsychiatry, provider education, community outreach, patient education, and advocacy. She emphasized that shared decision-making can improve care and may save time by building trust and supporting adherence.<br /><br />The discussion and Q&A centered on compensation for patient participation, including concerns about fair market value, clinical trial limits, and the role of IRBs. The session closed with a plug for CMSS scorecards to help organizations assess how meaningfully they engage patients.

Keywords

patient engagement

patient centricity

National Health Council

American Psychiatric Association

shared decision-making

telepsychiatry

fair market value

mental health

patient-centered care