Sustainability and Member Engagement – October 31, 2022-Sustainability and Member Engagement

Video Transcription

Video Summary

Helen Burstyn, CEO of the Council of Medical Specialist Societies (CMSS), introduces a webinar on sustainability and member engagement in clinical registries, focusing on their evolution and relevance in clinical research. The panel includes leaders Greg Martin, past president of the Society of Critical Care Medicine and professor at Emory University, and Krista Singleton from the CDC. The webinar discusses the importance of clinical data registries, especially during urgent times like the COVID-19 pandemic, for evidence gathering and treatment guidance. The panel emphasizes the essential role of registries in understanding diseases and improving clinical practice.<br /><br />Flora Lum from the American College of Ophthalmology talks about the IRIS Registry, a comprehensive database for eye disease aimed at improving care and supporting physicians with performance feedback and meeting MIPS requirements. As of mid-2022, the registry includes data from over 18,000 physicians and millions of patient visits. She highlights the quality improvement benefits and scientific advances derived from the registry’s data. <br /><br />Vishakha Kumar from the Society of Critical Care Medicine discusses the virus registry, created during the COVID-19 pandemic to collect and analyze clinical data. Despite initial challenges like resource-heavy data entry, funding from various sources helped automate data collection. The registry engaged globally, aiding scientific research and offering insights into clinical care during the pandemic.<br /><br />Gregory Pappas from the FDA speaks on the development of Coordinated Registry Networks (CRNs) and their role in utilizing real-world evidence for regulatory decisions. He elaborates on the maturity of CRNs in various medical specialties and their contributions, such as improving post-market surveillance and supporting clinical trials.<br /><br />The panel agrees on the importance of making data collection easier and using registries for various purposes, including quality improvement and scientific research. They emphasize the need for strategic collaborations and potential financial sustainability models to support the long-term success of these registries.

Keywords

Member Engagement

Sustainability

clinical registries

COVID-19 pandemic

evidence gathering

clinical research

IRIS Registry

quality improvement

real-world evidence

Coordinated Registry Networks

data collection

strategic collaborations