Research Partner Readiness and Integration into the Research Process-Research Partner Readiness and Integration into the Research Process

Research Partner Readiness and Integration into the Research Process

Video Transcription

Video Summary

The video transcript summarized the introduction of a webinar featuring the Patient-Led Research Collaborative discussing the development of scorecards for patient-led research in collaboration with medical specialty societies. They outlined the purpose of the scorecards, including research organization readiness and integration into the research process, with detailed explanations of each scorecard dimension. The team emphasized the importance of patient-led research, engaging patients at every stage of the research process, and shifting the power dynamics within the healthcare and research communities. Additionally, they discussed the challenges of gaining access to IRBs and funding and the need for a paradigm shift to prioritize patient-led research. The webinar aimed to encourage the use of scorecards for self-assessment by research organizations and foster collaboration between patients, researchers, and funders. The team welcomed feedback and participation in future events to further advance patient-led research initiatives.

Keywords

Patient-Led Research

Scorecards

Medical Specialty Societies

Research Organization Readiness

Patient Engagement

Power Dynamics

IRBs Access

Funding Challenges

Collaboration