Reflecting on Our Covid 19 Failures – A New Vision for Integrated Registries-Reflecting on Our Covid 19 Failures – A New Vision for Integrated Registries (slides)

Reflecting on Our Covid 19 Failures – A New Vision for Integrated Registries (slides)

Pdf Summary

The document discusses the importance of clinical registries in supporting pandemic treatment and response, focusing on Covid-19. It highlights the need for collaboration between specialty societies and academia in developing and implementing these registries. The American College of Surgeons, ASCO, and the Society of Critical Care Medicine are actively involved in creating and managing registries to gather data on Covid-19 patients, treatment outcomes, and adaptations to care. <br /><br />The ASCO Registry specifically targets patients with cancer affected by Covid-19, aiming to analyze symptoms, treatment impact, and care adaptations. The document also introduces the VIRUS COVID-19 Registry, managed by the Society of Critical Care Medicine, to collect data on ICU treatments and outcomes for Covid-19 patients worldwide.<br /><br />Lessons learned from these initiatives include the importance of data harmonization, rapid approval processes, and focusing on registry goals. Challenges such as resource limitations and political barriers are also addressed. The success strategies involve collaboration, harmonization of data, strong social media presence, and rapid approval processes.<br /><br />The document appreciates the funding support received from various organizations and encourages further collaboration and participation in registry initiatives. It outlines upcoming webinars discussing disparities in Covid-19, cloud-based platforms for data analytics, and patient engagement in clinical registries. Ultimately, the emphasis is on using technology and collaboration to advance Covid-19 response efforts and improve patient outcomes.

Keywords

clinical registries

Covid-19

pandemic treatment

collaboration

American College of Surgeons

ASCO Registry

Society of Critical Care Medicine

VIRUS COVID-19 Registry

data harmonization

patient outcomes