Prioritizing Patient Engagement and Inclusion of Patient-Generated Covid-19 Data-Prioritizing Patient Engagement and Inclusion of Patient-Generated Covid-19 Data (Slides)

Prioritizing Patient Engagement and Inclusion of Patient-Generated Covid-19 Data (Slides)

Pdf Summary

The document covers the importance of patient engagement and the inclusion of patient-generated data in managing the Covid-19 pandemic. The CMSS Webinar Series addresses the rapid development of clinical registries for Covid-19 by specialty societies and academia. It emphasizes the collaboration between these groups and highlights the use of patient-generated data for a more personalized approach to understanding symptoms and outcomes.<br /><br />Key speakers such as Susannah Fox, Gina Assaf, Hannah Davis, and Emily Sirotich discuss the significance of prioritizing patient involvement and utilizing patient-generated data. They explore the limitations of traditional research methods and advocate for a more patient-centric approach to data collection and analysis.<br /><br />The document also mentions the success of the Patient-Led Research Group within Body Politic in aggregating and analyzing Covid-19 data from patients, emphasizing the value of patient-reported outcomes. The discussion extends to the COVID-19 Global Rheumatology Alliance's efforts in collecting patient data through surveys and involving patients in research design.<br /><br />Overall, the document highlights the shift towards patient-integrated registries, emphasizing the importance of partnering with patients to improve the design of clinical registries and collect relevant outcomes. It showcases how patient-driven research can lead to a better understanding of complex diseases like Covid-19 and drive more personalized and effective treatment strategies.

Keywords

patient engagement

patient-generated data

Covid-19 pandemic

clinical registries

specialty societies

patient involvement

patient-centric approach

Patient-Led Research Group

patient-reported outcomes

COVID-19 Global Rheumatology Alliance