How to Improve Your Score/Q&A Session-How to Improve Your Score/Q&A Session

Video Transcription

Video Summary

The video transcript discusses the development of patient-led scorecards by the Council of Medical Specialty Societies and the Patient-Led Research Collaborative. The scorecards focus on evaluating organizations' readiness for patient-led collaboration, integration of patients into the research process, patient partner governance, and addressing patient burden. The discussion highlighted case studies on how patient groups, research partners, and funders can use these scorecards to improve collaboration and research outcomes. There was a focus on encouraging wider dissemination of the scorecards, potential challenges and pushback from funders, and the practical use of the scorecards for discussion and improvement rather than as a strict scoring tool. Overall, the goal is to promote meaningful patient engagement in research projects and improve collaboration between patients and researchers.

Keywords

patient-led scorecards

Council of Medical Specialty Societies

Patient-Led Research Collaborative

patient collaboration

research integration

patient partner governance

patient burden

case studies

research outcomes