CMSS and NHC Primer – Enhancing Patient Partnerships-CMSS and NHC Primer – Enhancing Patient Partnerships: How Patient Organizations and Medical Societies Can Enhance Patient Engagement in Clinical Registries and Research

CMSS and NHC Primer – Enhancing Patient Partnerships: How Patient Organizations and Medical Societies Can Enhance Patient Engagement in Clinical Registries and Research

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The document titled "CMSS-NHC Primer: Enhancing Patient Partnerships" highlights the importance of patient engagement in clinical registries and research. It emphasizes the role of patient organizations and medical societies in enhancing patient involvement in these initiatives. The primer discusses the background and purpose of patient engagement, the significance of clinical registries in the U.S. healthcare system, and the benefits of patient engagement.<br /><br />It explains the roles of registries in advancing care and treatment, improving outcomes, and setting clinical benchmarks. The primer also delves into how patients can benefit from participating in registries through contributing to research, connecting with others, and gaining access to valuable information. It provides examples of patient-focused registry messaging from various patient organizations involved in registries.<br /><br />The document underscores the importance of patient-centered, patient-reported outcomes (PROs) in registries and outlines the benefits of patient engagement for both patients and medical societies. It includes a case study highlighting a successful partnership between a medical specialty society and a patient advocacy organization. The primer offers recommendations for organizations looking to establish similar partnerships and emphasizes the need for collaboration and trust-building between patient groups and medical societies to achieve successful patient engagement in clinical registries.

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CMSS and NHC Primer – Enhancing Patient Partnerships: How Patient Organizations and Medical Societies Can Enhance Patient Engagement in Clinical Registries and Research

Keywords

patient engagement

clinical registries

medical societies

patient organizations

U.S. healthcare

patient-reported outcomes

research participation

patient partnerships

case study

collaboration